If anyone is feeling sorry for themselves today. Read this carepage http://www.carepages.com/carepages/brettjackson/updates/ and count your blessings. Life has been so unfair to this little boy. :confused: WARNING: You will cry looking at his page, but I'm sure his parents and little brothers could use a little extra encouragement today.
Also, an update on Brionna, she is on a new medication for her headaches and it seems to be helping. She has multiple appointments to have EEG's, a sleep test, meetings with a neurologist, meetings with her surgery team and all her other doctors in the next two months. Most of them are in March. Plus they have found she has a heart murmur so they need to get that checked out by her pediatrician. For now, she is doing okay. Not, great, but her headaches seem to have gotten a little better. They still think she is having seizures in her sleep, but haven't determined that yet for sure. I'll keep you posted as often as I can about her.
Oh gosh, poor Brionna. What next, huh?